Conquer Cystic Fibrosis
through research
I
n 2002 a small group of
parents of children with CF
decided to raise money for
Cystic Fibrosis WA (CFWA)
which, at the time, was in need
of financial support.
The 65 Roses Grand Ball for
Cystic Fibrosis was born and
$42,986.25 was raised.
Realising the potential they had
to raise significant funds, and
driven by the need to do all they
could to make a real difference
for people with CF, in 2003
this same group, in addition to
raising money for CFWA, raised
funds to donate to research.
Since then, the group has grown
to encompass people with CF
and family friends. This very
dedicated and extremely hard
working group have continued
to organise the 65 Roses Grand
Ball for Cystic Fibrosis, making
it an annual event. Their major
focus being research. Why?
The answer is best told in the
numbers. Life expectancy in
Australia for people with CF in
the 1960's was 5 years. It is now
35 years. Deaths in Australia of
younger people have, thankfully
declined dramatically since
1998. The six years from 1998 to
2004 saw a fall of 70% in the
number of deaths of people
with CF aged under 20 years.
The greatest contributing factor
to this is undoubtedly research.
Research leads to improvements
in treatments,which in turn
leads to longer, healthier lives.
To date the 65 Roses Balls
have raised $910,976.13 for
CFWA and CF research.
In 2012, Conquer Cystic Fibrosis
was incorporated, thus allowing
for expansion and increased
fundraising for CF research.
The Ball, the major fundraising
event has been renamed "The
Conquer Cystic Fibrosis Grand
Ball".
Unfortunately there is still no
cure for Cystic Fibrosis. But that
is something Conquer Cystic
Fibrosis Inc, intends to change.
There is still
no cure for
Cystic Fibrosis
Conquer
www.conquercysticfibrosis.com
C stic Fibrosis
Inc.
